ASOCIACIÓN CASTELLANO LEONESA DE PKU Y OTM

noticia pku

20/12/2007 12:57:09 - Marga

Hola, he leido en internet que se comercializaba una especialidad oral para el tratamiento de la fenilcetonuria y me gustaría saber si sabeis de que se trata o si me podeis informar algo sobre el tema. Gracias

• 02/03/2008 12:28:38 - joselu
  Re:noticia pku
  

  Las noticias que tengo son muy vagas.Consiste en unas pastillas y no todos los pacientes responden al tratamiento.En VALENCIA se nos denego por falta de dinero.Pero tenemos suficiente para la FORMULA 1.Un saludo

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• 11/03/2008 7:36:31 - zaz
  Re:noticia pku
  

  Me imagino que os refereis a la BH4. Mi hijo la toma y lleva una dieta más relajada aunque no libre. Es increible que vuestros hijos no tengan la posiblidad de tomarla por falta de dinero!!!!. En mi comunidad todo está subvencionado, medicamentos y comida y no nos cuesta un euro. Hay que luchar para conseguirlo. ADELANTE.

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• 11/08/2012 9:37:27 - BUNZzvtvhPyKbrL
  Re:Re:noticia pku
  

  case you missed to prvoieus finalists take a peak and get to know Lena, Libby, Andrea & Patricia! c2a0Voting ends tomorrow April 4th so if you havent already, would you

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• 12/08/2012 1:10:17 - pffIFLTcYazPjaaeO
  Re:Re:noticia pku
  

  Kpz4PY <a href=http://owribcxismys.com/>owribcxismys</a>

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• 12/08/2012 18:54:55 - kIqAYlhzt
  Re:Re:noticia pku
  

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• 13/08/2012 8:59:46 - tnxkSSQVrofi
  Re:Re:noticia pku
  

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• 14/08/2012 14:43:57 - lqJHfABlkScRq
  Re:Re:noticia pku
  

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• 24/10/2012 20:51:51 - JhzNsZJFlasV
  Re:Re:Re:noticia pku
  

  I use an inexpensive, easy-to-configure shonippg cart called Mals-e. I like it because I can accept Paypal, Amazon, and credit card payments you have to set up Paypal and Amazon account, too, of course. It makes buying easy for people. I also like it because for $8 per month, I can download sales into a spreadsheet. It takes about five minutes to go through the orders, make sure they payments and the shonippg cart matches, and have my spreadsheet ready to go. I use a fulfillment service back East that lets me to lots of print on demand. Were actually working on offering a suite of items to rescues for fundraising that can be done print on demand so that rescues dont have up front costs and can just reap the rewards.Google spreadsheets are great for keeping track of things, too. Ive used the Google online office applications for many things.

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• 24/10/2012 23:19:30 - dkQbvgwBzFdvCxcoSK
  Re:Re:Re:noticia pku
  

  Nice : I do like stevia, that is what I use my tea and tignhs like that. Although I dont really like baking with it because large amounts of it bother my teeth. Its cool that there will be so many bloggers at this Veg Fest, although I probably will end up not recognizing anyone : should be a good time though :

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• 24/10/2012 23:51:22 - fgaDyocuyEMHiQz
  Re:Re:Re:noticia pku
  

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• 26/10/2012 6:34:03 - YLtExwMUgIdbD
  Re:Re:Re:noticia pku
  

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• 26/10/2012 10:18:06 - BoaQPtqQamaCe
  Re:Re:Re:noticia pku
  

  The expertise snhies through. Thanks for taking the time to answer.

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• 27/10/2012 2:50:19 - HMrKwtDSTfZBMwVEBJc
  Re:Re:Re:noticia pku
  

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• 27/10/2012 7:48:00 - gExAiBPkPpq
  Re:Re:Re:noticia pku
  

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